What is Research Study Registry?
Research Study Registry is a completely voluntary and secure database created and maintained by our research department. It allows our research staff to contact you about our current studies. We will only contact you if we have a study that matches your interests.
These studies will have been previously reviewed and approved by an Institutional Review Board to evaluate the risks and benefits of each study. We will only contact you if we have a study that appears to match your interests. Research Study Registry is not a research project - it is a registry of information about individuals who are interested in research and willing to be contacted about participation in research studies. If we contact you about a study, you are not required to participate in or volunteer for the study. If we provide you with information about an available study, it does not mean that Minnesota Eye Consultants, P.A. is recommending that you participate in or consider participating in that study.
Who can get involved?
Anyone can get involved! Minnesota Eye Consultants' physicians, surgeons and researchers have participated in vision research studies for years, and were among a select group of individuals whose contributions led to many of the technologies in use today. Research Study Registry can help you find any type of research study, ranging from surveys to clinical studies. Many studies are looking for healthy people of all ages, whereas some are looking for people with specific eye conditions.
Research Study Registry: Registration
Registering with Research Study Registry is free and anyone can join. Please read the following text carefully before registering with Research Study Registry. You may wish to print a copy of this for your files.
Why might I want to register?
As a registrant, you might be able to hear about and get involved with research that may benefit others in the future. There is, however, a chance that there will be no benefit to you for registering with Research Study Registry. Even if you choose to register, we do not guarantee that there will be any studies in which you would be eligible to participate. Further, Minnesota Eye Consultants' Clinical Research Department makes no guarantee that our staff will contact you regarding any studies as a result of your registration with the Research Study Registry.
Is there any cost for becoming a registrant?
There is no cost to register with Research Study Registry.
Who can register?
Anyone can join. You do not have to be diagnosed with a health condition to be a registrant. If you decide to register, you need to confirm that you are at least 18 years of age. A parent, legal guardian or legally authorized representative may register someone under the age of 18 or an adult who is not able to enter their own information.
What do I have to do to register?
Joining Research Study Registry is easy and should only take a few minutes. If you decide to sign up, you will be asked to provide answers to a few questions about yourself, such as your age and contact information. You will also be able to provide as much or as little information as you want about your ocular health. All of this information will be stored securely and will be kept confidential. To begin the process, you will need to read the"Agreement" section below, and if you agree, you can then click"Accept" to begin the registration.
What happens once I register?
Once you register, your information becomes part of an internal database that our research department may search through when looking for people to contact about our studies. Remember that by registering, you do not have to take part in any study and you may choose not to respond to a researcher's message at any time.
How is my information used and protected?
The information collected for Research Study Registry is treated as confidential. If you choose to register, the information that you provide to Research Study Registry will be transmitted and stored in a secure system. Minnesota Eye Consultants, P.A. will not disclose to third parties any identifying data, including name, mailing address, e-mail address and phone number, unless you authorize such disclosure or such disclosure is required by law. We will never sell, rent or exchange your personal information.
If you are a patient of Minnesota Eye Consultants, P.A., the information you provide for Research Study Registry will not be combined with your medical records.
Minnesota Eye Consultants, P.A. is committed to ensuring the privacy and confidentiality of all Protected Health Information (PHI). Appropriate measures are taken to keep all PHI private, secure, and confidential. We collect and disclose such information only according to our confidentiality policies and federal and state laws designed to maintain privacy, including the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule and our Notice of Privacy Practices.
How can I remove myself from the registry?
You can remove yourself from this registry by emailing firstname.lastname@example.org requesting to be removed.
What if I have questions or concerns?
For general questions, please contact Minnesota Eye Consultants' Clinical Research Department at email@example.com or 612-813-3607. If you have questions or concerns about a particular study, you may contact the research study sponsor and/or that study's Institutional Review Board.